I had another chemo treatment yesterday, which went well. It took place at the Dana Farber in their Desens Lab in the lower basement. So I didn't see daylight for 12 hours or so. All went well without a reaction, so things are looking up. Bill and I were back in Padanaram having dinner at 8 pm on Thursday.
Prior to that appointment, I was in Concord for a few days and went to visit 2 friends in Manchester and meet my friend's new horse.
Last Thursday, I had my head shaved in a buzz cut. I am definitely losing hair, but haven't lost all of it, so it may have been premature. (my sister would say "proactive"). My wig hasn;t gotten much wear, mostly I like baseball caps and beach hats. People are very nice and polite, even hold doors for me. I am surprised how something I dreaded has not had the huge impact I would have expected. It is still a shock to look in the mirror, but I am getting used to it.
The children are fine, thanks to my sister and sister-in-law. Nathaniel has been enjoying his Rocketry class at Friends Academy, sailing class at New Bedford Yacht Club and his Orton-Gillingham tutor. Add to that playing golf and swimming, and you have a busy happy boy. Emily is also taking sailing classes, and hanging out with friends. She has done a gymnastics class here, in preparation for the Fall. They seem happy and content to be here with cousins and aunts and uncles coming and going.
My next treatment is on 8/19 at the Dana Farber, if anyone wants to visit. It is a long time to be there starting at 7 am. Ruthie will stop in on 9/9. I think it is too long to ask anyone to stay the entire time although Bill likes to be there at the beginning and the end. (which has been 5:30 or 6:30, but could be earlier)
I am off to an accupuncture treatment to see if it gives me some relief (later on). The peripheral neuropathy seems better. There are various aches and pains in few days, which I would like to have some relief from.
Best to you all. Keep the cards and letters coming. They help cheer me up!! Maura
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7 comments:
I am sending you a very big hug!
soon a card will appear!
love ya
dinah
Glad to hear you are managing the treatment without the bad reactions you were getting early on. Our thoughts and prayers are with you as always.
love you
judy
Dear Maura,
I will miss not seeing you this summer in North Haven. It sounds like the kids are having great fun in Nonquitt, which reminds me of the Cape (which I loved so much as a child!). Glad your side effects aren't as bad as you feared. I bet the "buzz cut" looks adorable on you. I'm glad you have so many helpers there to support you, Bill and the kids. What a blessing. I love reading your blogs because I feel so far away (geographically) from you. Maine weather has been damp, chilly and foggy. I am wearing a thick polar fleece jacket as I write this! And it's the 3rd of August! Max comes tomorrow for 2 weeks.
Much love to you as you go through all this stuff. You are a trooper! Kate
Maura:
Glad to hear that the Chemo is going easier though it sounds like a long day. Sorry about the hair. I wish I had your confidence that if I shaved mine it would grow back thick. Its disappearing fast sans Chemo.
We are well. Beth got over a nasty food borne infection and is feeling well again. We have her two daughters and three kids here, (Ericka's two and Kate's boyfriends daughter). Very busy. We forgot it was our anniversary until an hour before we sat down to dinner. Perfect company for it.
Wish your family could be there for it. I still feel honored to have been part of your wedding and extended family.
We get back to Boston on 8/17 and will hope to visit with you sometime that week at your convenience. Look forward to seeing you then.
Will & Beth
Thanks so much for the update, Maura. We're always thinking about you, knowing you are winning this challenge.
I loved hearing your voice ~ 08/13 it is, unless I hear from you otherwise.
Bald is totally in, and like I mentioned earlier, you can carry it off with ease.
Hi to Bill, Emily and Nathaniel.
My best,
Cassy
We miss you around town. I look forward to catching up with you in person in the next couple of weeks. I am happy to hear all is going well on the South Shore and that you are managing chemo so well. Stay strong! xo,Michelle
Hi Maura:
Thinking of you often! Glad you are sustaining the treatments. Things are very quite here in Concord and at the Community Chest. Steph just got back from Paris and I am off to Maine for 2 weeks; where I hope summer finally arrives. We would be happy to come entertain you in September, either at hope or during treatment. Our very best!! Astrid and Steph
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